When my son was first diagnosed with fragile X syndrome (5 years ago!) I spent hours on the internet. I was searching for blogs, Instagram hashtags, google images of grown children with fragile X, answers, support, anything. I wanted to know everything. I wanted to know what our future looked liked. I needed to know. I needed to see that it would be okay…
Read MoreI originally wrote this post 2 years ago but never posted it. I wanted to share it now because I realize how far we have come. If you are new to the fragile X journey, a special-needs journey, or just parenting in general, I hope that this post will give you hope…
Read MoreWe ran out of apples two days ago. Two. Days. Ago. I should know better…
Read MoreToday was a hard day. The truth is, most days are. Today also happens to mark the one year anniversary of Conor’s diagnosis…
Read More“Call Baapa. Call Baapa. Call Baapa. Call Baapa. Call Baapa.”
Conor repeated this over and over and over (and over and over) while he paged through a book on the living room floor. He was stuck…
Read MoreRetard. Mentally retarded. Mental retardation. These are not words that you want to hear in association with your child. These are fighting words. You call a kid retarded...you can wait for mama bear to come get you. She will come. And you won't need to wait long either.
Read MoreThere is so much I have wanted to say lately but when I try to type it out, I get stuck. I want to talk about Laine and I want to share all about our summer. I'll get there. Eventually. But tonight I'm overwhelmed and I am ready to share why.
Read MoreI had an interesting conversation with some of my coworkers at lunch a few weeks ago. Of course we talked about our kids. My pregnancy came into the conversation and so did transitioning Conor to his new room. Then the topic of potty training came up…
Read MoreProgress is a hard topic for me to write about. Up until my last post everything I have shared on this blog has been written in the middle of the night when I couldn’t sleep. My mind has an especially hard time shutting down these days and I find myself word vomiting into the notes section on my iPhone at 2 AM…
Read MoreMy pregnancy? I love being pregnant. I'm the definition of the annoying friend who feels like a damn goddess when she is pregnant and has zero complaints...
Read MoreSince sharing our story I have gotten quite a few questions. Most frequently, "How did you know?” How did we know? We didn't...
Read MoreI'm not sure how to describe some of the thoughts that have flooded my mind this past month. It feels like my future is being taken away from me one memory at a time...
Read MoreOur journey of raising a child with Fragile X Syndrome.
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