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Fragile Mama

delicate and vulnerable

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Fragile Mama

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February 19, 2019

Can You Imagine?

February 19, 2019/ Beverlee Shellum
Can You Imagine?

Today was a hard day. The truth is, most days are. Today also happens to mark the one year anniversary of Conor’s diagnosis…

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February 19, 2019/ Beverlee Shellum/ 2 Comments
Fragile X Blog, Autism, Special Needs, Fragile X Syndrome, Fragile X, Diagnosis
November 24, 2018

Call Baapa

November 24, 2018/ Beverlee Shellum
Call Baapa

“Call Baapa. Call Baapa. Call Baapa. Call Baapa. Call Baapa.”

Conor repeated this over and over and over (and over and over) while he paged through a book on the living room floor. He was stuck…

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November 24, 2018/ Beverlee Shellum/ Comment
Fragile X Blog, Fragile X Syndrome, Fragile X, Autism
October 05, 2018

Does Not

October 05, 2018/ Beverlee Shellum
Does Not

We were walking into the Children’s Museum when my phone rang. It wasn’t a number I had saved but it looked familiar. As soon as I realized who the number belonged to, the phone stopped ringing. It was the Genetics Clinic…

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October 05, 2018/ Beverlee Shellum/ Comment
Fragile X Blog, Fragile X, Fragile X Syndrome
September 07, 2018

The R Word

September 07, 2018/ Beverlee Shellum
The R Word

Retard. Mentally retarded. Mental retardation. These are not words that you want to hear in association with your child. These are fighting words. You call a kid retarded...you can wait for mama bear to come get you. She will come. And you won't need to wait long either.

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September 07, 2018/ Beverlee Shellum/ 2 Comments
Retard, Fragile X, Fragile X Blog
August 27, 2018

Eventually

August 27, 2018/ Beverlee Shellum
Eventually

There is so much I have wanted to say lately but when I try to type it out, I get stuck. I want to talk about Laine and I want to share all about our summer. I'll get there. Eventually. But tonight I'm overwhelmed and I am ready to share why.

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August 27, 2018/ Beverlee Shellum/ 1 Comment
Fragile X Blog, Fragile X, Challenges, Struggle
July 11, 2018

Laine Nicole

July 11, 2018/ Beverlee Shellum
Laine Nicole

Welcome to the world, Laine!

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July 11, 2018/ Beverlee Shellum/ 1 Comment
Fragile X Blog, Newborn, Infant, Fragile X
May 30, 2018

When You Don't Know

May 30, 2018/ Beverlee Shellum
When You Don't Know

I had an interesting conversation with some of my coworkers at lunch a few weeks ago. Of course we talked about our kids. My pregnancy came into the conversation and so did transitioning Conor to his new room. Then the topic of potty training came up…

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May 30, 2018/ Beverlee Shellum/ Comment
Fragile X Blog
April 27, 2018

Progress

April 27, 2018/ Beverlee Shellum
Progress

Progress is a hard topic for me to write about. Up until my last post everything I have shared on this blog has been written in the middle of the night when I couldn’t sleep. My mind has an especially hard time shutting down these days and I find myself word vomiting into the notes section on my iPhone at 2 AM…

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April 27, 2018/ Beverlee Shellum/ Comment
Progress, Fragile X Blog
April 25, 2018

Bad Dog

April 25, 2018/ Beverlee Shellum
Bad Dog

A rite of passage for any kid with a dog is being able to blame things on the dog. Right? I never had one growing up but I think I could have used "the dog did it" to get out of more than one mess…

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April 25, 2018/ Beverlee Shellum/ Comment
Fragile X Blog, Progress
April 06, 2018

How Is Your Pregnancy Going?

April 06, 2018/ Beverlee Shellum
How Is Your Pregnancy Going?

My pregnancy? I love being pregnant. I'm the definition of the annoying friend who feels like a damn goddess when she is pregnant and has zero complaints...

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April 06, 2018/ Beverlee Shellum/ Comment
Fragile X Blog, Pregnancy
March 23, 2018

How Did You Know?

March 23, 2018/ Beverlee Shellum
How Did You Know?

Since sharing our story I have gotten quite a few questions. Most frequently, "How did you know?” How did we know? We didn't...

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March 23, 2018/ Beverlee Shellum/ 1 Comment
Fragile X Blog, Development, Developmental Delay
March 12, 2018

It's Weird

March 12, 2018/ Beverlee Shellum
It's Weird

I'm not sure how to describe some of the thoughts that have flooded my mind this past month. It feels like my future is being taken away from me one memory at a time...

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March 12, 2018/ Beverlee Shellum/ Comment
Fragile X Blog
March 07, 2018

Just Keep Swimming

March 07, 2018/ Beverlee Shellum
Just Keep Swimming

Do you believe that your dreams have meaning? Last night I had a dream that Conor and I were in a plane crash...

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March 07, 2018/ Beverlee Shellum/ 1 Comment
Dreams
March 06, 2018

It's Okay

March 06, 2018/ Beverlee Shellum
It's Okay

It's okay not to know what to say. I don't know what to say either. I'm not expecting you to say all the right words. I don't think those words exist...

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March 06, 2018/ Beverlee Shellum/ Comment
Condolences, Bad News, Sad News
March 03, 2018

Fear

March 03, 2018/ Beverlee Shellum
Fear

Basements. Bears. Guns.

You could say that these are fears of mine. Not debilitating, irrational fears or anything...

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March 03, 2018/ Beverlee Shellum/ 1 Comment
Fear, Emotions, Future
March 02, 2018

Fragile

March 02, 2018/ Beverlee Shellum
Fragile

Perhaps one of the worst things you can do as a new mother is compare your child to all of the other children around you. I am a worrier by nature (thanks, mom) so of course I am the queen of comparison...

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March 02, 2018/ Beverlee Shellum/ Comment
Fragile X, Syndrome, Diagnosis, Gene Mutation, FXS
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Fragile Mama

Our journey of raising a child with Fragile X Syndrome.

  • 2019 1
    • Feb 19, 2019 Can You Imagine?
  • 2018 15
    • Nov 24, 2018 Call Baapa
    • Oct 5, 2018 Does Not
    • Sep 7, 2018 The R Word
    • Aug 27, 2018 Eventually
    • Jul 11, 2018 Laine Nicole
    • May 30, 2018 When You Don't Know
    • Apr 27, 2018 Progress
    • Apr 25, 2018 Bad Dog
    • Apr 6, 2018 How Is Your Pregnancy Going?
    • Mar 23, 2018 How Did You Know?
    • Mar 12, 2018 It's Weird
    • Mar 7, 2018 Just Keep Swimming
    • Mar 6, 2018 It's Okay
    • Mar 3, 2018 Fear
    • Mar 2, 2018 Fragile
Blog RSS
Rare cuddle session on the couch. #cocoandgoose
I’ll love you forever, I’ll like you for [most of the time], as long as I’m living my Valentine you’ll be. #parentpoem
I think winter is finally getting the best of me; so I booked a few spa services and melted into the couch with my baby.
Laine’s outfit was so cute today that even I had more confidence.
Sister. Auntie. Friend. Luckily I don’t have to decide which role I need the most because you fill them all. Happy birthday, Cookie! We love you so much. ❌⭕️🥰
Test driving our new luggage with help from the #navigatingmsp program. Conor is not a fan of the cockpit though. #delta #fragilex #autism #ausm
I ordered this print when I was getting the nursery ready for Laine. It arrived the day after we received Conor’s Fragile X diagnosis. It wasn’t the reason I ordered it, but I’ve never needed a reminder of my own strength more. At times I feel like 2018 took a lot from me; then I look at my two beautiful children and realize that I haven’t lost anything at all. #happynewyear #specialneedsmom #fragilex
B: Can you grab the peas from the freezer downstairs?
K: In a minute. I have my hands full.
She sleeps through the night but she never naps. Hard to complain when she smiles like that though.
No ifs or ands. Just butts. 🍑 #bestbums
All I want for Christmas are the biggest smiles and the loudest giggles. 📸: #amywurdockphotography  #santasession
I don’t wonder why they are both sick. #takeyourfingeroutofhermouth #accidentalrenaissance
Happy birthday husband! I’m glad you like your coffee mug, scarf, gloves (that are substantial but not too bulky), framed picture of Laine for your desk, and ties. 🤣 Can’t wait to celebrate your 90th birthday next year!
My cutest new niece puppy, Lady. 🐶 #frenchie #frenchiesofinstagram @nikirobisonbrows
4.5 hours and 7 diapers into the day, I catch a sweet moment between best friends. #siblinggoals
My friends say she looks just like me. This is why they are my friends. #bestcompliment #beauty
Yeah, THAT Hanson. @smontaindurst @emily.larson25
Ready for treats! 🎃🐺 #trickortreat
Enjoying a night out with my girls! Thank you @keithshellum for being an amazing dad today and always.
In the chaos of the morning, my toddler insisted on reading “the monkey book” to his little sister.
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