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Fragile Mama

delicate and vulnerable

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Fragile Mama

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November 24, 2018

Call Baapa

November 24, 2018/ Bev
Call Baapa

“Call Baapa. Call Baapa. Call Baapa. Call Baapa. Call Baapa.”

Conor repeated this over and over and over (and over and over) while he paged through a book on the living room floor. He was stuck…

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November 24, 2018/ Bev/ Comment
Fragile X Blog, Fragile X Syndrome, Fragile X, Autism
October 05, 2018

Does Not

October 05, 2018/ Bev
Does Not

We were walking into the Children’s Museum when my phone rang. It wasn’t a number I had saved but it looked familiar. As soon as I realized who the number belonged to, the phone stopped ringing. It was the Genetics Clinic…

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October 05, 2018/ Bev/ Comment
Fragile X Blog, Fragile X, Fragile X Syndrome
September 07, 2018

The R Word

September 07, 2018/ Bev
The R Word

Retard. Mentally retarded. Mental retardation. These are not words that you want to hear in association with your child. These are fighting words. You call a kid retarded...you can wait for mama bear to come get you. She will come. And you won't need to wait long either.

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September 07, 2018/ Bev/ 2 Comments
Retard, Fragile X, Fragile X Blog
August 27, 2018

Eventually

August 27, 2018/ Bev
Eventually

There is so much I have wanted to say lately but when I try to type it out, I get stuck. I want to talk about Laine and I want to share all about our summer. I'll get there. Eventually. But tonight I'm overwhelmed and I am ready to share why.

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August 27, 2018/ Bev/ 1 Comment
Fragile X Blog, Fragile X, Challenges, Struggle
July 11, 2018

Laine Nicole

July 11, 2018/ Bev
Laine Nicole

Welcome to the world, Laine!

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July 11, 2018/ Bev/ 1 Comment
Fragile X Blog, Newborn, Infant, Fragile X
May 30, 2018

When You Don't Know

May 30, 2018/ Bev
When You Don't Know

I had an interesting conversation with some of my coworkers at lunch a few weeks ago. Of course we talked about our kids. My pregnancy came into the conversation and so did transitioning Conor to his new room. Then the topic of potty training came up…

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May 30, 2018/ Bev/ Comment
Fragile X Blog
April 27, 2018

Progress

April 27, 2018/ Bev
Progress

Progress is a hard topic for me to write about. Up until my last post everything I have shared on this blog has been written in the middle of the night when I couldn’t sleep. My mind has an especially hard time shutting down these days and I find myself word vomiting into the notes section on my iPhone at 2 AM…

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April 27, 2018/ Bev/ Comment
Progress, Fragile X Blog
April 25, 2018

Bad Dog

April 25, 2018/ Bev
Bad Dog

A rite of passage for any kid with a dog is being able to blame things on the dog. Right? I never had one growing up but I think I could have used "the dog did it" to get out of more than one mess…

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April 25, 2018/ Bev/ Comment
Fragile X Blog, Progress
April 06, 2018

How Is Your Pregnancy Going?

April 06, 2018/ Bev
How Is Your Pregnancy Going?

My pregnancy? I love being pregnant. I'm the definition of the annoying friend who feels like a damn goddess when she is pregnant and has zero complaints...

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April 06, 2018/ Bev/ 1 Comment
Fragile X Blog, Pregnancy
March 23, 2018

How Did You Know?

March 23, 2018/ Bev
How Did You Know?

Since sharing our story I have gotten quite a few questions. Most frequently, "How did you know?” How did we know? We didn't...

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March 23, 2018/ Bev/ 1 Comment
Fragile X Blog, Development, Developmental Delay
March 12, 2018

It's Weird

March 12, 2018/ Bev
It's Weird

I'm not sure how to describe some of the thoughts that have flooded my mind this past month. It feels like my future is being taken away from me one memory at a time...

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March 12, 2018/ Bev/ Comment
Fragile X Blog
March 07, 2018

Just Keep Swimming

March 07, 2018/ Bev
Just Keep Swimming

Do you believe that your dreams have meaning? Last night I had a dream that Conor and I were in a plane crash...

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March 07, 2018/ Bev/ 2 Comments
Dreams
March 06, 2018

It's Okay

March 06, 2018/ Bev
It's Okay

It's okay not to know what to say. I don't know what to say either. I'm not expecting you to say all the right words. I don't think those words exist...

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March 06, 2018/ Bev/ Comment
Condolences, Bad News, Sad News
March 03, 2018

Fear

March 03, 2018/ Bev
Fear

Basements. Bears. Guns.

You could say that these are fears of mine. Not debilitating, irrational fears or anything...

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March 03, 2018/ Bev/ 2 Comments
Fear, Emotions, Future
March 02, 2018

Fragile

March 02, 2018/ Bev
Fragile

Perhaps one of the worst things you can do as a new mother is compare your child to all of the other children around you. I am a worrier by nature (thanks, mom) so of course I am the queen of comparison...

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March 02, 2018/ Bev/ Comment
Fragile X, Syndrome, Diagnosis, Gene Mutation, FXS
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Fragile Mama

Our journey of raising a child with Fragile X Syndrome.

  • 2023 1
    • Jan 24, 2023 Seven
  • 2020 2
    • Dec 21, 2020 Five
    • Nov 7, 2020 The Big Bad Wolf
  • 2019 2
    • Mar 7, 2019 How Do You Like Them Apples
    • Feb 19, 2019 Can You Imagine?
  • 2018 15
    • Nov 24, 2018 Call Baapa
    • Oct 5, 2018 Does Not
    • Sep 7, 2018 The R Word
    • Aug 27, 2018 Eventually
    • Jul 11, 2018 Laine Nicole
    • May 30, 2018 When You Don't Know
    • Apr 27, 2018 Progress
    • Apr 25, 2018 Bad Dog
    • Apr 6, 2018 How Is Your Pregnancy Going?
    • Mar 23, 2018 How Did You Know?
    • Mar 12, 2018 It's Weird
    • Mar 7, 2018 Just Keep Swimming
    • Mar 6, 2018 It's Okay
    • Mar 3, 2018 Fear
    • Mar 2, 2018 Fragile
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Working at a hospital during a global pandemic is not easy. Grounding myself in what matters most and thanking God for the incredible doctors, nurses, and frontline staff who surround me. Take care and be mindful of your actions. Don’t be a jer
Smiling because we get to drop them off at grandma’s tonight. 😁
I pick you. 👃👆
Valentines by me. Cookies by @gartygoodies.
Happy birthday Auntie Cookie! We love you intensely.
We had so much fun celebrating Conor’s 4th birthday @rainbowmidwest. It was the perfect party for a slide obsessed preschooler 🥳 (and thank you for taking pictures for me @katchgren @smontaindurst @emily.larson25 @nikirobisonbrows).
I can’t actually explain this one. #loveluvs @luvs
Went to print my @chatbooks from 2019 and realized I never posted this. Welp, I guess it will show up in 2020. 
Conor = Astronaut 👨‍🚀 Laine = aLien 👽
#couplescostume #halloween2019
K: Remember how worried I was when you set him on the ottoman? Now I just let Laine jump from the furniture and yell from the other room, “You’re fine!” #4years #birthdayboy
Santa came for an early visit this year. 😉🥰 📸: @amywurdock #magicoftheseason #santaclaus
I may look happy and carefree, but I’m actually freaking out about the toll I sped through since I didn’t have any cash. 😬 It’s not the first time I’ve forgotten about tolls and it’s probably not the last time either.
I just took a DNA test, turns out I’m 💯 % these people. (Last one, I promise. Probably not the last @lizzobeeating line I’ll overuse though.)
📸: @mattiekrall
Laine started saying “I love you” this week. She’s been showing us for a long time though. 💕 📸: @mattiekrall
If you look close you can see the death grip that Laine has on a sugar cookie. 📸: @mattiekrall
Family dinner at Cookie and Mike’s is quickly becoming our favorite way to end the weekend.
📷: @nikirobisonbrows
Playing indoors for the foreseeable future. ❄️
Happy 7th Anniversary @keithshellum! There’s no one else I’d rather build IKEA furniture with. Next time we are buying preassembled shit though. 🤣
Captured that “my mom is super annoying” expression perfectly.
Likes: Food, puppies, shoes, and stairs.
Dislikes: Naps and hair clips.
Dragged my husband across the river to Brooklyn. Stumbled upon @timeoutnewyork filled with awesome eats, drinks, shops, and sees. Plus took this cool photo of the Empire State Building. Do you see it? #timeoutnewyork
Sailed the NY Harbor with Captain David and @tribecasailing.

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