Real Stories

I Will Sit With You In The Dark

There is a video just under 7 minutes at the beginning of this post. It is worth a watch!

Welcome to Holland

While this essay has sparked some controversy, in its simplest form I have fallen completely in love with it.

Special Olympics: Fragile X

I will always have big dreams for Conor. I truly believe that he can achieve anything.

Favorite Special-Needs Blogs

Finding Cooper's Voice

Mrs. Rogers' Neighborhood

The Fragile X Files

Navigating Genetics

Fragile Mama

Our journey of raising a child with Fragile X Syndrome.

2023 1
- Jan 24, 2023 Seven
2020 2
- Dec 21, 2020 Five
- Nov 7, 2020 The Big Bad Wolf
2019 2
- Mar 7, 2019 How Do You Like Them Apples
- Feb 19, 2019 Can You Imagine?
2018 15
- Nov 24, 2018 Call Baapa
- Oct 5, 2018 Does Not
- Sep 7, 2018 The R Word
- Aug 27, 2018 Eventually
- Jul 11, 2018 Laine Nicole
- May 30, 2018 When You Don't Know
- Apr 27, 2018 Progress
- Apr 25, 2018 Bad Dog
- Apr 6, 2018 How Is Your Pregnancy Going?
- Mar 23, 2018 How Did You Know?
- Mar 12, 2018 It's Weird
- Mar 7, 2018 Just Keep Swimming
- Mar 6, 2018 It's Okay
- Mar 3, 2018 Fear
- Mar 2, 2018 Fragile

Working at a hospital during a global pandemic is not easy. Grounding myself in what matters most and thanking God for the incredible doctors, nurses, and frontline staff who surround me. Take care and be mindful of your actions. Don’t be a jer

Smiling because we get to drop them off at grandma’s tonight. 😁

I pick you. 👃👆
Valentines by me. Cookies by @gartygoodies.

Happy birthday Auntie Cookie! We love you intensely.

We had so much fun celebrating Conor’s 4th birthday @rainbowmidwest. It was the perfect party for a slide obsessed preschooler 🥳 (and thank you for taking pictures for me @katchgren @smontaindurst @emily.larson25 @nikirobisonbrows).

I can’t actually explain this one. #loveluvs @luvs

Went to print my @chatbooks from 2019 and realized I never posted this. Welp, I guess it will show up in 2020.
Conor = Astronaut 👨&zwj;🚀 Laine = aLien 👽
#couplescostume #halloween2019

K: Remember how worried I was when you set him on the ottoman? Now I just let Laine jump from the furniture and yell from the other room, “You’re fine!” #4years #birthdayboy

Santa came for an early visit this year. 😉🥰 📸: @amywurdock #magicoftheseason #santaclaus

I may look happy and carefree, but I’m actually freaking out about the toll I sped through since I didn’t have any cash. 😬 It’s not the first time I’ve forgotten about tolls and it’s probably not the last time either.

I just took a DNA test, turns out I’m 💯 % these people. (Last one, I promise. Probably not the last @lizzobeeating line I’ll overuse though.)
📸: @mattiekrall

Laine started saying “I love you” this week. She’s been showing us for a long time though. 💕 📸: @mattiekrall

If you look close you can see the death grip that Laine has on a sugar cookie. 📸: @mattiekrall

Family dinner at Cookie and Mike’s is quickly becoming our favorite way to end the weekend.
📷: @nikirobisonbrows

Playing indoors for the foreseeable future. ❄️

Happy 7th Anniversary @keithshellum! There’s no one else I’d rather build IKEA furniture with. Next time we are buying preassembled shit though. 🤣

Captured that “my mom is super annoying” expression perfectly.

Likes: Food, puppies, shoes, and stairs.
Dislikes: Naps and hair clips.

Dragged my husband across the river to Brooklyn. Stumbled upon @timeoutnewyork filled with awesome eats, drinks, shops, and sees. Plus took this cool photo of the Empire State Building. Do you see it? #timeoutnewyork

Sailed the NY Harbor with Captain David and @tribecasailing.